Table of Contents:
  • Chapter 1. Talking about rare diseases : a compendium on rare diseases and online news
  • Chapter 2. Health-related communication and rare diseases : a passport for the patient journey
  • Chapter 3. Designing sustainable social media health communication campaigns for promoting rare diseases
  • Chapter 4. Digital media in rare diseases or "knowledge is power" : the role of EURODIS in creating awareness and diagnosing rare diseases
  • Chapter 5. Public media coverage of rare diseases and disorders : the case of Spanish public broadcasting corporation
  • Chapter 6. Representation of patients with rare diseases in Spanish media
  • Chapter 7. Networks in rare diseases : identities, partnership, and advocacy in Brazil
  • Chapter 8. Challenges of parents with children with rare diseases in Portugal : a relational perspective
  • Chapter 9. Neuropsychiatry in late onset tay-sachs disease : key features and possible etiology of psychosis
  • Chapter 10. Portraying rare and misdiagnosed diseases in movies : a content analysis, 1980-2018
  • Chapter 11. How is the administrator's experience in managing health facebook groups? The impact of social media in patients with IBD.